UK Biobank leak: Health details of 500,000 people are offered for sale

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TLDR

  • Health records of all 500,000 UK Biobank volunteers – including cancer diagnoses, metabolomics, and ICD-coded outcomes – listed for sale on Alibaba.

Key Takeaways

  • Three Alibaba listings appeared on April 20; at least one contains the full 500,000-person dataset with genomic, proteomic, and haematology measurements.
  • Data scope is unusually deep: gender, age, socioeconomic status, mental health, cognitive function, self-reported history, and ICD-coded disease outcomes including cancer diagnosis dates.
  • Listings also offered paid support for submitting formal UK Biobank data access applications, suggesting insider knowledge of the access workflow.
  • UK Biobank is a research charity whose data underpins thousands of peer-reviewed studies; a full leak undermines consent guarantees for every participant.

Hacker News Comment Review

  • The single comment links to a prior HN thread about UK Biobank health data surfacing on GitHub, suggesting this is a recurring exfiltration pattern rather than a one-off event.
  • No broader technical or policy discussion has emerged yet on this thread.

Notable Comments

  • @WalterGR: points to earlier HN thread on UK Biobank data leaking via GitHub, implying a pattern of repeated unauthorized redistribution.

Original | Discuss on HN